Mary Farris Meek

Saturday, November 29, 2008

FRIDAY, NOVEMBER 28, 2008 08:10 AM, CST
We are making progress! Mary Farris starts feeding therapy on Monday. The therapist sounds very positive and has lots of ideas to get our little girl to eat.
Thanksgiving meant a lot to us yesterday, we are so thankful for our baby girl, friends, and family. Mary Farris said she was thankful for the sweet potatoes! We are trying to let her taste lots of things (even though she cant eat solids yet) so that she will learn that eating is not a bad thing. She also likes to lick suckers, chocolate chip cookies and donuts!
Tenncare approved for us to have a nurse come to our home for 8 hours/day Mon-Fri. I have talked with the nurse and she sounds great. She will come this afternoon to get acquainted. I am going to be with her for a few weeks until she is comfortable (ok, until I am comfortable!) and then I'm going back to work. We have many appointments this week, therapy, pediatrician, surgeon, early intervention... Whew! We will keep you guys updated.

3 comments:

Lynn Truame said...: Woo hoo, supermom & superdad have made a spanky blog for their lil girl complete with slideshow, video, and colored text! Show us how it is done! ;) xx oo Anneliese; November 29, 2008 at 12:17 PM
Robin Elizabeth said...: What a beautiful little girl! How
fortunate you are to have her home.
My daughter was born at 23 weeks and has very similar issues to Mary Farris. Being a preemie mom is so hard but truly a gift. You are very lucky to have in home nursing care. I wish Pennsylvania offered that. I had to get a Nanny with medical and preemie experience and it is so expensive. Well congrats on having you little baby girl home. The NICU is great but there is no place like home for our babies.

Wendy, mom to Robin Elizabeth 23w 5d , 1 lb 4 oz, 143 day NICU stay Robinelizabethdemarco@blogspot.com; November 29, 2008 at 4:44 PM
Anonymous said...: Wow, Kim, I really like this blog. I wanted to tell our Masters student at church, who is from Ghana, W. Africa to try to get on Carebridge, but thought it was too much for me to do! LOL Now I can give him your blogspot and he can go and look. They have a baby about 2 weeks older than Mary Farris.
Looks like things are going good for you all. Of course, I get a first hand report from Judy every Saturday.
Love, Barbara; November 30, 2008 at 5:40 PM

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Welcome

Welcome to our site! Our precious baby came to us on May 25, 2008 at 10:54 am. She was only 25 weeks and weighed 1lb 3oz. Mary Farris spent 148 days in the NICU and has had 11 surgeries thus far. Feel free to follow her progress here, we are so proud of our little miracle!

Mary Farris was born with a birth defect called choanal atresia and had to be on a vent for 11 weeks. She taught herself how to breathe through her mouth, came off the vent and a short time later came off of oxygen. She had a PDA and ROP neither of which required surgery. She has done extremely well and her only lingering problem is with feeding. We are truly thankful for how far she has come and can't wait for you all to meet her in the spring.

We are truly thankful to the doctors, nurses, and RT's who cared for our girl like she was their own. We sincerely appreciate our family, friends, co-workers, church members, etc. that have been so supportive of us through this time. From prayers to food and gas money you guys have been wonderful to us!

How Preemie Moms Are Chosen(Adapted from Erma Bombeck)Did you ever wonder how the mothers of premature babies are chosen?Somehow, I visualize God hovering over Earth, selecting his instrumentsfor propagation with great care and deliberation.As he observes, he instructs his angels to take notes in a giant ledger."Beth Armstrong, son. Patron Saint, Matthew. Marjorie Forrest, daughter.Patron Saint, Celia. Carrie Rutledge, twins. Patron Saint ... give her Gerard.He's used to profanity."Finally, he passes a name to an angel and smiles. "Give her a preemie."The angel is curious. "Why this one, God? She's so happy.""Exactly," smiles God. "Could I give a premature baby a mother who knows no laughter?That would be cruel." "But does she have the patience?" asks the angel."I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it.I watched her today.She has that sense of self and independence so rare and so necessary in a mother.You see, the child I'm going to give her has a world of its own.She has to make it live in her world, and that's not going to be easy.""But Lord, I don't think she even believes in you."God smiles. "No matter, I can fix that. This one is perfect.She has just the right amount of selfishness."The angel gasps, "Selfishness?! Is that a virtue?"God nods. "If she can't separate herself from the child occasionally, she will never survive.Yes, here is a woman whom I will bless with a child less than perfect.She doesn't know it yet, but she is to be envied.She will never take for granted a spoken word.She will never consider a step ordinary.When her child says 'mama' for the first time, she will be witness to a miracle and know it.I will permit her to see clearly the things I see – ignorance, cruelty, prejudice – and allow her to rise above them.She will never be alone.I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side.""And what about her Patron Saint?" asks the angel, his pen poised in the air.God smiles. "A mirror will suffice."

Mary Farris Meek

Saturday, November 29, 2008

3 comments:

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